Glioblastoma

My husband never gets sick, he never gets colds, flus, or anything. My kids and I get sick and cough all over our small house but Mark……he never gets sick!

Until now.

After 4 and 1/2 hours of a diagnostic brain biopsy we have the dreaded diagnosis. Glioblastoma. Until just recently I couldn’t even pronounce the word and now it’s all I think about. This aggressive cancer is mean and nasty with a grim outlook due to high mortality rates. The prognosis for my beloved is not what anyone can handle hearing. 12 months. That’s all we’ve been given which is more generous than the 6 month life expectancy they gave him if we’d chosen to not pursue treatments.

So we fight. My hubby is a fighter and I am too. We’re not going down without one and we’re certainly not giving up. Yes, glioblastoma is a hard reality but our days aren’t numbered by doctors. God numbers our days. God knows the outcome. God is in control.

Since writing the above there are some changes…..

We’ve made a decision to get another opinion at Duke in NC. Please pray for us! The team at Duke specialises in brain tumors and are known nationwide for their advancements in brain tumor research. We are at peace knowing God is leading us there. And we continue to hope.❤

Much love,

Viv

Author: Viv

I'm a spoonie Blogger grieving the loss of my husband who went home 2/13/22.

57 thoughts on “Glioblastoma”

  1. I am so sorry to hear about your husband’s illness, I do understand my daughter had one pheochromocytoma removed last year and found out she has adrenal cancer, and we are also seeking out a specialist who understands this rare cancer. My prayers are with you.

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  2. Thank you for the update, Vivian “God numbers our days. God knows the outcome. God is in control.” These are truly words of comfort. May God cover you all with His grace and peace. Prayers continue for Mark.

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  3. So sorry to hear about your husband. My prayers are with you. May God lead and guide you every step of the way. May His healing hand be upon your hubby. May the Lord fill you all with peace as you wait on Him. When fear tends to set in, press into His presence.

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  6. Continuing to pray Viv. You are right, God is in control.

    Isaiah 41:10, “Don’t be afraid, for I am with you. Don’t be discouraged, for I am your God. I will strengthen you and help you. I will hold you up with my victorious right hand.”

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  7. I’m so sorry to hear about the diagnosis. I’ll be praying for all of you. May God’s transcending peace continued to be felt. He IS in control. Lots of love from Canada. ❤❤❤❤❤❤❤

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  10. Thank you for updating us.
    Are there other prayer concerns? How is his comfort level? Pain? How is your condition? How are your children? Extended family?
    Lord God, I thank You that this place is a haven of peace and rest, and that Viv can come here for encouragement and prayers.

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    1. I know this post wasn’t very detailed dear Kathy, I’m so sorry about that. There is so much. So far Mark is doing well under radiation and chemo therapy with minimal side effects. He is talking and walking again due to PT, OT and speech therapies. No pain but mild headaches off and on. He has developed diabetes though due to all his body is going through. I’m okay now due to MS drugs. So God is holding me up. Kids are ok. We are surrounded by friends and 3 churches are helping with meals, rides, and money. We also relocated to be closer to friends who can help just temporarily. It’s been a lot!! But God is good and gets us through each day. xoxo

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  11. Thank you for giving us the privilege to pray. I pray that you both continue to rest in His care, guidance, comfort and peace. I pray that you know He has already gone before you, paving the way. Remember, that He will never leave you nor forsake you. I’ll be praying. ❤️

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  13. Thank you for the update, your family has been in my prayers!
    Viv I pray that second opinion may provide a better outcome…hold tightly to that “even if” faith regardless!!!!

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  19. My thoughts and prayers are with you and your family and your husband and especially the doctors at Duke. I’m sending much love and many hugs your way!! I hope you don’t mind if I ask my mom to add your husband to her church’s prayer list.

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      1. Amen! So do I.
        Lord, Please comfort Vivian, today. Be with her. Give her strength and faith to trust in you. Bless her, Lord. Heal her husband, we pray. In Jesus name, Amen.

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  21. Oh yes, a second opinion is a great idea. I work in a histology lab and just yesterday, a colleague and I were discussing glioblastoma and astrocytoma and the markers needed to diagnose them. We had to conclude that either always warrants a second opinion, as the pathology, especially related to those cancers, can vary. I am going to pray for you each time I have glioblastoma cases cross my desk, which is frequently right now because our team is actively developing an improved diagnostic antibody. God bless you and encourage you!

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  22. Wow! I am so sorry to hear of your husband’s diagnosis. I prayed for him, you and the whole family.

    “If GOD does not bring us out of the storm, His will sustain us in it. Trust Him either way.” Tangie T. Woods

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